FSHD UK CHARITY

To preserve and protect good health among and relieve the needs of people living with FSHD, their families and carers, in particular but not exclusively by raising awareness of FSHD within the general public, medical and scientific communities and support medical and scientifc organisations or indivduals with activities and projects to further the Charity's overall objectives.

Governing document

CIO - FOUNDATION Registered 14 Dec 2023

Charitable objects

THE OBJECTS OF THE CIO ARE: TO PRESERVE AND PROTECT GOOD HEALTH AMONG, AND RELIEVE THE NEEDS OF, PEOPLE LIVING WITH FSHD, THEIR FAMILIES AND CARERS, IN PARTICULAR BUT NOT EXCLUSIVELY BY: (A) PROVIDING INFORMATION, HELP AND SUPPORT TO SUCH PEOPLE AND THEIR FAMILIES AND CARERS; (B) MAKING FINANCIAL DONATIONS TO SUPPORT ORGANISATIONS AND INDIVIDUALS CARRYING OUT RESEARCH INTO FSHD, THE USEFUL RESULTS OF WHICH WILL BE PUBLISHED FOR PUBLIC BENEFIT; AND (C) RAISING AWARENESS OF FSHD WITHIN THE GENERAL PUBLIC, MEDICAL AND SCIENTIFIC COMMUNITIES. (D) SUPPORT MEDICAL AND SCIENTIFIC ORGANISATIONS OR INDIVIDUALS WITH ACTIVITIES AND PROJECTS TO FURTHER THE CHARITY?S OVERALL OBJECTIVE OF HELPING TO RELIEVE THE BURDEN ON, AND IMPROVE QUALITY OF LIFE FOR, PEOPLE LIVING WITH FSHD.